协和医学杂志

2020, v.11(04) 453-458

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如何制订患者指南
How to Develop Patient Version of Guidelines

陈耀龙;荀杨芹;李博;王小琴;刘恩梅;徐东;李艳;商洪才;杨克虎;
CHEN Yao-long;XUN Yang-qin;LI Bo;WANG Xiao-qin;LIU En-mei;XU Dong;LI Yan;SHANG Hong-cai;YANG Ke-hu;Lanzhou University Institute of Health Data Science;Evidence-based Medicine Center,School of Basic Medical Sciences,Lanzhou University;WHO Collaborating Center for Guideline Implementation and Knowledge Translation;Chinese GRADE Center;Beijing Hospital of Traditional Chinese Medicine,Capital Medical University;Beijing Institute of Traditional Chinese Medicine;The Michael G.DeGroote Institute for Pa

摘要(Abstract):

患者指南(patient version of guidelines,PVG)作为一种健康教育工具,能够帮助患者更好地了解所患疾病,促进医患共同决策,改善患者健康结局。近年来随着PVG数量的增多,其质量也倍受关注,但如何科学、严谨、规范地为患者制订指南,国内外尚无统一标准。本文通过介绍PVG的发展现状、制订原则、流程及报告规范,在此基础上提出我国制订高质量PVG的思考与建议。
Patient version of guidelines(PVG) serves as a tool of health education to help patients better self-manage disease and promote shared decision-making between doctors and patients. As the number of PVG increased in recent years, their quality has gained much attention. However, there is currently no standard or guidance on how to develop PVG scientifically and rigorously. In this article, we introduce the current status, development principles, procedures and reporting standards of PVG. We also provide thoughts and suggestions on how to better develop PVG in China.

关键词(KeyWords): 循证医学;指南制订;患者指南
evidence-based medicine;guideline development;patient version of guidelines

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基金项目(Foundation): 国家重点研发计划(2018YFC1705500)

作者(Author): 陈耀龙;荀杨芹;李博;王小琴;刘恩梅;徐东;李艳;商洪才;杨克虎;
CHEN Yao-long;XUN Yang-qin;LI Bo;WANG Xiao-qin;LIU En-mei;XU Dong;LI Yan;SHANG Hong-cai;YANG Ke-hu;Lanzhou University Institute of Health Data Science;Evidence-based Medicine Center,School of Basic Medical Sciences,Lanzhou University;WHO Collaborating Center for Guideline Implementation and Knowledge Translation;Chinese GRADE Center;Beijing Hospital of Traditional Chinese Medicine,Capital Medical University;Beijing Institute of Traditional Chinese Medicine;The Michael G.DeGroote Institute for Pa

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